Needed: a new framework to make sure health companies play fair with patient data

Excerpt – The U.S. approach to data sharing stands in stark contrast with standards now in place in other parts of the world, including Europe‚Äôs General Data Protection Regulation (GDPR). More importantly, it goes against what people say they want, which is to freely share their data for scientific or research purposes that help others, but also to share in the upside when their data are highly valuable, such as when they help lead to the discovery of a multibillion-dollar drug. [..] But unlike money, no global infrastructure exists to govern, manage, and watch data transactions, and no collective institutions exist to … Read More